First to all of you a big thank you for your comments and prayers and good wishes. And taking your time to read my very depressing posts.
You are marvellous people.
I will try to do it kind of shorthand because I don't have too much time to linger at the computer.
Last Monday Jan came home of hospital. His trouble with retaining fluid in the belly might be a kind of tromoses somewhere in or just in the entrance or exit of his liver. That helds back the filtering of a certain substance and than the whole internal "household"gets upset. Seems to sit on a tricky spot to operate, is probably not an option. That's probably why they gave him another bloodthinner medication.
Last time he was there they drained him, it was about 14 ltrs!!!
First few days he was home he was doing rather well.
But starting around Friday already he got worse again, his weight gained and not because he ate so much. His belly became bigger again and he started to have somewhat the same issues as last time. Bad coordination, concentration, in short all misarable.
He should go to his specialist this week Thursday, but I decided it was no good and in fact real bad to wait till then. Couldn;t even think of how to get there.
so last Sunday night both of us where almost up and around all night, Jan having trouble with kind of vomitting, only clear slime, buit it exhausated him terribly. It already started one or two days ago, but the Sunday night it was the worst. Then in the morning Jan himself asked me to phone the hospital.
I first tried to get to the assisted gastrointestinal liver doctor(Jan had permission to do so in case things went bad), but wasn;t yet reachable. So called 112 for an ambulance and they came quick and we went to hospital. After a few hours of research at Emergency( you know blood test, lung photo, urine test, question to answer, everything all over again, just like two weeks ago) and he was at the ward. I went home and tried to get some rest, Must say I did get some decent sleep, which was needed.
Now today I will hear what they will do, I guess there will be an echo and perhaps already another drainage. And then I hope they will not release him too soon, because he is exhausted and needs extra feeding for one and then I hope the doctors will come with a solution for the problem. Impossible for both of us to carry on this way, of course.
I wished I had happier news to tell, but at the moment it isn't there.
Now I will end this post, have to get dressed, eat something, then have to do some shopping, and perhaps if there is time left do something in the house or already prepare my dinner. Then to Jan, visiting hours are from 15.30 till 19.30, like to go early, and return home when there is still a bit of daylight.
Till next time.
Take care and stay healthy!